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Developmental Disability Advisory Board - Minutes 03/22/11
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Developmental Disabilities Advisory Board (DDAB)
M I N U T E S
March 22, 2011
Board Attendees: Carl Hanson (Co-Chair), Lesly Sheinbaum (Co-chair), Phil Johnson,
Patty Perry, Kim Rafferty
Board Absentees: Catharine Robinson, Kathryne Kent
Guests: Tobias Clawson
Staff: Julia Danskin, Anna McEnery, Donna Marvin (recorder)
Call to Order
Co-Chair Carl Hanson called the meeting to order at 3:26 pm.
Approval of Agenda
There were no changes proposed to the agenda.
Member Sheinbaum moved to approve the agenda as written. Motion seconded by
Member Rafferty. Motion carried unanimously.
Approval of Minutes from January 25, 2011
Member Rafferty moved to approve the minutes as written. Motion seconded by
Member Perry. Motion carried unanimously.
Introductions
Those in attendance were introduced and a sign-in sheet was circulated.
Public Comments
No comments at this time.
New Business and Presentations:
Update on Legislative Session/Budget
Lesly Sheinbaum, PTCO Administrator, shared information about her visit to Olympia as a
member of Community Residential Services Association (CRSA). CRSA is a state-wide
association made up largely of group home and supported living providers and is a very strong
lobbying organization. They meet every 2 months and met recently in Olympia specifically to try
to make contact with the Legislators.
Lesly and a hired lobbyist met with Senator Jim Hargrove and Rep. Steve Tharinger. The
Legislators are aware of what we do and the issues and are struggling with decisions to be
made due to the budget crisis - so there is no good news. As a provider, she is bracing for some
kind of a reduction in reimbursement rates. They can’t really cut hours per person, so the cuts
would come through wage freezes or reductions.
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Lesly talked about a training requirement bill –that requires more training for long-term-care
workers. Originally the State was going to reimburse agencies for their time spent for training
staff through certified trainers. (Trainers have to go through a certification program through the
State). She questions where they are going to get the money to reimburse staff. This is a big
question and many are lobbying to get us out of that requirement. At this point it is on-hold.
Agencies like hers have many training requirements and spend a lot of time orienting/training
people. Some agencies as small as Lesly’s, train existing staff to be a trainer, as of January 1
they send their new staff to another agency for their training hours.
There are a couple of other Bills that if not passed-will not be good. The rehabilitation center
(RHC) closure issue (institutions) is uncertain and a lot of questions remain. Anna noted that
she heard at the ACHS meeting that 32 out of 52 people from Frances Haddon Morgan will
move to another institution and only 18-20 will move into the community. The Legislature has to
make an official decision before anything can occur and because they are dragging their feet,
staff at FHM they are unable to have a high-quality planning process around the move.
Phil Johnson noted that he had attended one of the Wednesday DD gatherings. He found it very
interesting and said that “the people who can speak best for them, are the people themselves –
they have a loud voice”. He offered to be of assistance if there is ever any time that testimony is
needed before a Senate or House committee, as he does that all the time and is frequently in
Olympia.
Transition Network Update
Kathyrn Kent, Special Education Director, Port Townsend High School, was not in attendance to
make this presentation. So Anna filled-in by explaining about the work that is being done toward
creating a transition academy in Jefferson County. This is an off-site campus transition program
for students. Many other communities have them for students with disabilities. The school
district has an apartment where students with disabilities go and experience things like shopping
for food, cooking a meal, or doing laundry – it’s their central point for going out into the
community for vocational assessments and employment sites, etc. Work on this has been going
on for the last 3-4 years and we are getting closer to moving ahead with a final project and will
give updates as things progress. Anna also noted that the Transition Network is still up and
running (we don’t have as many people as we would like, but it is still very positive).
Update on Coordinated Transportation efforts in Jefferson County
Patty Perry, Jefferson County Mobility Coordinator, gave an update on coordinated
transportation issues in the county. She noted that she is now working also with Mason Transit
– they did not have a Mobility Manager so she also goes to Mason County on Fridays to help
them out.
She shared a story about a transportation challenge for a client who very much wanted to go to
work (in Gardiner). Transit has 3 Dial-a-ride buses and they try to cover the whole county by
grouping people together, but they sometimes are unable to form a group in the Gardiner area.
The client knew how to ride transit, but the bus stop was too far for him to walk to and he would
have to cross 101 to get back on the bus. Patty is trying to make it work with the case worker
and the agency where he was working (who agreed to take him to the bus stop after work).
They went out, took pictures, walked it, found a safe location for the bus to stop – and with a
little effort they had a success story.
She also reported on other activities. She is surveying the needs and interest in the Kala Point
area where they would like a mini-route to go through there which would provide easier access
to Dial-a-Ride, (Dial-a-Ride requires that the person be within ¾ mile from a route). She is also
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looking at the Quilcene area and may possibly group people together for a shopping day.
Travel training is available for people who are capable of riding the bus but need training from
getting from point A to point B. They assess them at their residence to evaluate how much they
know, what their abilities are. Generally speaking, if they can remember and do 3 consecutive
things in a row, then they can usually learn how to ride a bus.
DDD Update
Tobias Clawson, DDD Outstation Manager, gave an update. There are many unknowns, but
one thing we do know is that change is definitely in the air and despite many uncertainties, he
wanted to focus on what we do know is happening.
Non-paid services caseload information: he distributed a handout with the letter and flow chart.
DDD serves a lot of folks with a lot of different needs. There are many folks who are eligible for
DDD who are not receiving a paid service. In January many received a letter telling them that
they no longer have a case manager with a phone number to call if they need help. The handout
also included a “Process flow for Managing Requests from Clients on No-Paid Services
Caseload” which depicts what happens to phone calls. It’s very confusing. People can also
contact a local person (Tobias). This is the information that we know now and shows what is
currently happening in our community.
Tobias distributed the “2011 DSHS Regional Map”. He explained that we do know one thing that
is happening – the regional consolidation. There were previously 6 Regions, they are being
consolidated into 3. We are in Region 3 (old Regions 5 and 6 combining). The new Regional
Administrator has been selected, anita delight, (no capitals). These changes take effect May 1.
He does not know who we are going to be falling under, whether Tacoma or Olympia. Each
Region is going to have a “hub” and our hub will be in Vancouver. The map shows the locations
of the RHCs.
Each adult age 18 and over who is eligible for DDD is also eligible for up to 30 days in an RHC,
(a respite). He noted that there are not a lot of requests for this, but it does happen.
Dates for the next State furloughs are March 28, April 22, May 27 and June 10. This is a reality
of our times, so everybody has just got to try to adjust and deal with it and remember that the
priority is to help people who experience developmental disabilities to be healthy and safe.
The individual and family support program is out of State funds & was frozen in December. This
helps individuals who are not on a waiver. They obtain an allowance on a monthly basis to
make purchases that are needed.
There is significant change coming, so there is a paradigm shift that is happening. We need to
look more at informal supports – what we can do within our communities to support individuals -
we have to be more creative.
Approval of By-Laws
Copies of the updated By-Laws were distributed and Carl Hanson noted that this has been a
long process and explained the delays. Ultimately there were only 2 changes: 1) it now better
reflects the Co-Chair structure, and 2) a clarification was made (on page 3) to define the quorum
as “majority is 1 more than half” for a quorum. Currently there are 7 members, so 4 are needed
to make a quorum. A needed correction (the 3rd bullet under Article III: Duties) was pointed out
by Anna McEnery - it should read “Region 3” instead of “Region 6”. There was no further
discussion.
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Member Rafferty moved to approve the By-Laws as amended to reflect Region 3,
motion seconded by Member Sheinbaum. Motion carried unanimously.
DDD Budget Update/Employment Program Changes (Client Rates & Acuity Levels)
Anna McEnery distributed a condensed version of the budget to bring it down to the basic
pieces.
Changes that we’re looking at:
In our county we have always used a budget category called Community Information
and Education, but in many other counties, they have not put funding into that category.
In our county we fund the ARC, People First, job clubs, posters and resource guides and
staff time. We fund many services to augment other services. DDD started looking
around the state and noted the discrepancies in use of the funding. We previously
received a certain amount of funding, it stayed the same (depending on if we got a little
more for Transition students, or not). If we served all of our clients we were able to take
that funding and do some of these other project to use for education, etc. Now DDD
wants to take all the funding back into 1 pile and to reallocate it based on a cap
percentage or maybe $100 per client in the community. We have been spending an
average of $96,165 this fiscal year and last fiscal year. So if they are looking at capping
it at 5 or 5 ½ %, that would mean that we would go down to $18-20,000 – a huge cut.
There has been a lot of discussion on this and the Division Director, Linda Rolfe, said
that she believes that every county should be using the indirect and the direct funds, so
that every county needs to start accessing some community information and education
funding.
The other issue of the table is for a 3 year transition period, which means that the first
year, starting 07/01/11, all counties would stay the same when it comes to the amount of
community information and education that they have and then we would have a year to
do some planning to look to the community to try to find those resources, to plan with the
providers that currently receive this funding to say “well, the following year, then we’d
have it in half of what we have now, and then the third year it would go to this new
formula. At the last Association of County Coordinator meeting, DDD was saying that
they thought they had agreed to a 2-year transition where the first year is by half. So
right now we are in negotiations about that. But that would be a big shift for our budget.
The other big shift is that DDD wants to look at every client that is on our County
employment and day services caseload, and they want to group them based on low,
medium or high acuity levels and they would have a range of hours that they would have
their own individualized budgets, then that’s how much funding each County would get,
based on the amount of clients that they have right now. In our community we have had
fluctuations for various reasons, and we’ve always been able to work out with our budget
and never have a waiting list and if someone needed funding we tried to move funding
for them to have it. Now it’s not going to be as flexible, it’s going to be pretty rigid. In the
larger Counties, like Pierce and King, there is a huge waiting list of clients. It’s a
mandate that clients who are on the Waiver have services, so that is part of the issue. It
remains to be seen how all of this new re-structuring of funds is going to turn out.
Depending on how the acuity levels come out for the clients, we could be looking at
some drastic cuts. Anna feels very saddened about all the infrastructure that we have
created here in our community and all the work that we have done, we would hate to see
all of that disappear, and then if and when funding did come back we would have to
rebuild it again. We will just have to see what happens.
There was additional discussion
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Connected Communities Project
Anna explained that this is a Federal project (that just ended) that focuses on building
community relationships and networks. This project looked at 36 people with severe disabilities
across four different counties in Washington State that needed to find individualized
employment. They looked at a people in the community who would be considered a “community
connector”. An individual with a lot of personal connections to people, places, businesses,
organizations and resources, but not necessarily connected to the disability field. They worked
on hiring that person 3-5 hours/week and using their contacts and opportunities to help them
connect with the community and find employment for people. There were a lot of interesting
stories that occurred and 41% of the people found employment through this program.
Anna thinks that when we are looking at a lack of funding in the future and less resources, this
seems like a way to harness some of the relationships and connections in our own community
networks, as far as trying to find jobs for people. She distributed copies of their handout and
requested that Board members keep them in their DD notebooks as she has invited one of the
organizers of this project (Jim Korey) to give a presentation. Anna and Tim Bruce, County
Coordinator from Clallam County, attended this workshop. Tim has Jim Corey come and have a
discussion with the Clallam County Board members, and Anna would like to introduce this idea
to the Board in order to talk about this project in more detail.
The handout describes the “why, how, who and what”. One thing that has come out of this is
that they are doing a lot of work with Rotary - with the focus on employment connections. Anna
had thought that there might be one or two mentoring projects that we could focus on for adults
with developmental disabilities that don’t have as much employment experience.
She talked about the workshop and lines of thinking that it triggered (ways we volunteer in the
community; get out of your comfort zone). We will be hearing more about this in the future.
Skookum Recycling
Anna reported that Skookum now has the contract for recycling. She explained that every four
years the DD Program goes out and does a recycling safety review in the context of the client’s
safety. There was an accident with a client quite a few years ago and so we just want to make
sure we’re monitoring safety for the clients.
She distributed copies of the previous consult review of July, 2007. The next review will be
March 28th.
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Old Business & Informational Items
a. Updates:
STEP UP (Special Training (on) Emergency Preparedness (for Unique Populations)
Emergency Preparedness Group Update
Anna reported on presentations given to JPREP, PTSD Special Ed Classroom,
Neighborhood GRP and Seaport Landing. (Jefferson Peninsula Emergency Response)
presentation: JPREP is made up of Jefferson County emergency first responders,
agencies, neighborhood organizational groups, the Red Cross, Public Health and is
coordinated by Emergency Management. A presentation was given to them by Anna,
Carl Hansen and several members of with various disabilities. Anna introduced it and
talked about what STEP UP is and some statistics on people with disabilities and then
each person spoke about their own experience with their disability as well as their
connection to emergency preparedness. They talked about using appropriate (People
First) language and ended with Anna sharing notes from a great the Public Health
Emergency Health Summit that that she attended in Atlanta, GA. She received a lot of
positive feedback on it and may do it again to other organizations. There was further
discussion about emergency preparedness. The presentation to PTSD Special Ed
Classroom was given by Carl Hanson and Shirley Williams and it was very successful.
Two other members gave a presentation to the Neighborhood GRP and there were a
series of classes at Seaport Landing that were very well attended.
TEAM (Transition Towards Excellence in Achievement & Mobility ACT
Anna distributed informational e-mail about TEAM ACT which is Congressional
legislation out of Washington D.C. relating to Bills to Aid TEAM )Transition Toward
Excellence in Achievement and Mobility). Aimed at education empowerment and
employment for public funded systems for youths with significant disabilities in high
school. The end result is to become gainfully employed in an integrated setting or
pursue a post-secondary education or contribute in a meaningful way to your
community upon leaving high school.
She thinks that there may be funding for a Transition Coordinator coming out of the
ESD. She wanted everyone to know about this. Senator Harper was impressed with
Washington State because of the partnership project, and Jefferson County was one of
the counties that got that Project Search funding. This is about schools getting out and
connecting with their community, other agencies & students getting a job before they
leave from school.
b. Upcoming Workshops:
Systematic Instruction – Kathy Goldenberger – April 12th 8:30-3:30 pm – Skookum
Building
Fading & Natural Supports – Kathy Goldenberger – May 17th 8:30-3:30 pm –
Skookum Building
Volunteering & Unpaid Workplace Assessments: Requirements & Strategies – Susan
Harrell – April 18th – 1-4 pm – Main Conference Room, Public Health
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c. DD Program Planning Update
Schedule DD Community Forum, DD Board Retreat & DD Provider Retreat/Meeting in
early June 2011
Board Sub-Committee for Forum & Retreat to schedule dates
Anna explained that she was hoping to get a Board sub-committee to look at dates,
agenda items and other details with her. Carl offered to help. She clarified that the
Retreat will happen after the Forum.
RFQ Sub-Committee needed: Anna is working on an RFQ for employment and day
programs for contracts that begin July 1. She is also working on the RFQ process.
Carl asked how things are set up for the continuation of Project SEARCH. Anna reported
that the schools have taken on the funding for it. She was overseeing the MOU but that
has been given over to Concerned Citizens. The County is still part of the partnership
with the schools, the hospital, Concerned Citizens, and we provide funding technical
assistance if needed.
Public Comment
No comments at this time.
Adjournment
The meeting was adjourned at 5:00 pm.